To learn about how we support UK based Myotonic Dystrophy patients, doctors and researchers, please view our registry leaflet and the information pages in the menu on your left. Here you will also find our registration user guide with simple step-by-step instructions on how to sign up to participate. 

The registry is currently funded solely by the UK charities Muscular Dystrophy UK, Myotonic Dystrophy Support Group and Cure DM, and is affiliated with International networks including the Global Alliance for DM Awareness and TREAT-NMD.